PARENTAL EXPERIENCES IN AUTISM CHILDREARING
Universitas Negeri Surabaya
DOI:
https://doi.org/10.56943/sujana.v2i3.385This research is concerned about the experiences of parents raising children with ASD (Autism Spectrum Disorder) or commonly called autism. Autism is a disorder that most children suffer since infancy and toddlerhood. Parenting and raising children with autism compared to other normal children certainly have differences in the care, nurturing, growth, and development of these children. This research aims to find out the parenting experience of parents who have children with autism. This research used qualitative research methods, phenomenology, with interviews as the data search method. Interviews were conducted to several informants, including parents of children with ASD. The interviews were conducted online due to the Covid-19 pandemic, which requires us to minimize the intensity of physical interactions and social distancing. The research findings indicated that many parents suffered denial or shock when they recognized that their child had an autism spectrum disorder. Family and community support have a big impact in providing encouragement and acceptance for parents. The role of community and environment is very significant for children with autism and parents. In educating and caring for a child with autism, strength and patience are required. The research findings also identified that the major concerns of parents are usually about their children’s future and the acceptance of children with autism by the society.
Keywords: Autism Spectrum Disorder Childrearing Parental Experience
Ansari, S., McMahon, C., & Bernier, A. (2020). Parental mind-mindedness: Comparing parents’ representations of their children with Autism Spectrum Disorder and siblings. Research in Autism Spectrum Disorders, 71(2). https://doi.org/10.1016/j.rasd.2019.101491
Astari, N. F. (2021). Persepsi Masyarakat Tentang Banyak Anak Banyak Rezeqi. Kompasiana.
Ayun, Q. (2017). Pola Asuh Orang Tua dan Metode Pengasuhan dalam Membentuk Kepribadian Anak. ThufuLA: Jurnal Inovasi Pendidikan Guru Raudhatul Athfal, 5(1). https://doi.org/http://dx.doi.org/10.21043/thufula.v5i1.2421
Bram, L. H. (2020). Mental Health Strategies To Support Families Of Children With Autism: Lessons Learned From A Psychologist And Parent For Non-Mental Health Professionals. Journal of Interprofessional Education & Practice. https://doi.org/https://doi.org/10.1016/j.xjep.2020.100405
Dewi, R., Inayatillah, & Yullyana, R. (2018). Pengalaman Orangtua dalam Mengasuh Anak Autis di Kota Banda Aceh. Psikoislamedia: Jurnal Psikologi, 3(2), 288–301. https://doi.org/http://dx.doi.org/10.22373/psikoislamedia.v3i2.5625
Fauqi, I. F. (2022). Teacher Strategies in Online Learning Due to Pandemic: A Literature Review. Sujana: Education and Learning Review, 1(1). https://journal.jfpublisher.com/index.php/sujana/article/view/182
Kwok, K., & Kwok, D. K. (2020). More Than Comfort and Discomfort: Emotion Work of Parenting Children with Autism in Hong Kong. Children and Youth Services Review, 118. https://doi.org/https://doi.org/10.1016/j.childyouth.2020.105456
Liao, X., Lei, X., & Li, Y. (2019). Stigma Among Parents of Children with Autism: A Literature Review. Asian Journal of Psychiatry, 45, 88–94. https://doi.org/https://doi.org/10.1016/j.ajp.2019.09.007
Lloyd, S., Osborne, L. A., & Reed, P. (2019). Personal Experiences Disclosed by Parents of Children with Autism Spectrum Disorder: A YouTube Analysis. Research in Autism Spectrum Disorders2, 64, 13–22. https://doi.org/https://doi.org/10.1016/j.rasd.2019.03.009
Mazzone, S., & Nader-Grosbois, N. (2016). How Are Parental Reactions to Children’s Emotions Related to Their Theory of Mind Abilities? Psychology, 7, 166–179. https://doi.org/10.4236/psych.2016.72019
Meleady, J., Clyne, C., Braham, J., & Carr, A. (2020). Positive Contributions Among Parents of Children on The Autism Spectrum: A Systematic Review. Research in Autism Spectrum Disorders, 78. https://doi.org/https://doi.org/10.1016/j.rasd.2020.101635
Meleady, J., Nearchou, F., Bramham, J., & Carr, A. (2020). Family adaptation among parents of children on the autism spectrum without a comorbid intellectual disability: A test of the Double ABCX model. Research in Autism Spectrum Disorders, 78. https://doi.org/https://doi.org/10.1016/j.rasd.2020.101637
Milton, D. (2015). What is Autism? NAS Autism and Good Practice in Design Conference.
Morrison, J., & Flegel, K. (2016). Interviewing Children and Adolescents: Skills and Strategies for Effective DSM-Five Diagnosis. Guilford.
Nixon, Rubini, B., & Sunaryo, W. (2023). Evaluation of the Inclusion Program at The Inclusive Senior High Schoolsin Bogor, West Java: Empirical Study using the Context, Input, Process, and Product (CIPP) Method. SUJANA (Journal of Education and Learning Review), 2(1), 50–65. https://doi.org/https://doi.org/10.56943/sujana.v2.i1.279
Pattiruhu, I. C. S., Rompas, S., & Simak, V. (2019). Fungsi Afektif Keluarga dan Fungsi Sosialisasi Keluarga Dengan Perilaku Seksual Remaja. Keperawatan, 7(2).
Prevention, C. for D. C. and. (2023). Data & Statistics on Autism Spectrum Disorder.
Qin, X., Feng, Y., Qu, F., Luo, Y., Chen, B., Chen, M., Zou, Y., & Zhang, L. (2021). Posttraumatic Growth Among Parents of Children with Autism Spectrum Disorder in China and Its Relationship to Family Function and Mental Resilience: A Cross-Sectional Study. Journal of Pediatric Nursing, 57. https://doi.org/https://doi.org/10.1016/j.pedn.2020.10.026
Rabba, A. S., Dissanayake, C., & Barbaro, J. (2019). Parents’ Experiences of An Early Autism Diagnosis: Insights into Their Needs. Research in Autism Spectrum Disorders2, 66. https://doi.org/https://doi.org/10.1016/j.rasd.2019.101415
Rahayu, S. M. (2014). Deteksi dan Intervensi Dini Pada Anak Autis. Jurnal Pendidikan Anak, 3(1), 420–428. https://doi.org/https://doi.org/10.21831/jpa.v3i1.2900
Riandini, S. (2015). Pengaruh Pola Pengasuhan dengan Perkembangan Komunikasi Anak Autis kepada Orang Tua. Majority, 4(8), 99–106.
Rusilanti, Dahlia, M., & Yulianti, Y. (2015). Gizi dan Kesehatan Anak Prasekolah. PT. Remaja Rosdakarya.
Sukma, Hayati, F., & Marlini, C. (2021). Peran Keluarga Terhadap Pendidikan Anak Usia Dini: Studi Kasus Di PAUD Gaseh Bunda di Kabupaten Aceh Besar. Jurnal Ilmiah Mahasiswa, 2(2).
Tjokro, S. H., & Mamesah, M. (2022). Correlation Of Quality Health Services And The Motivation Of Patients Revisiting Polyclinic. Lux Mensana: Journal of Scientific Health, 1(3).
Wiwin. (2019). Kenali Autisme Sejak Dini. Universitas Gadjah Mada Fakultas Kedokteran Kesehatan Masyarakat Dan Keperawatan.
Zebua, D. J. (2020). Dianggap Nakal, Anak Autis Dipasung Orangtua di Kandang Ayam. Kompas.Com.
